Advocacy

I am excited to announce that I have been nominated for the WEGO Health Award “Advocating for Another” in the 6th Annual WEGO Health Awards. WEGO Health is a mission-driven company connecting healthcare with the experience, skills, and insights of patient leaders. They are the world’s largest network of patient leaders, working across virtually all […]

Remembering Sherri Little

March 12, 2016

Sherri Little is a client who passed away in July 2015 due to complications from chronic pain. Learn more about her story and legacy.

Tami Stackelhouse, a fibromyalgia coach, patient, and support group leader, has won a scholarship to the National Fibromyalgia & Chronic Pain Association’s national training program, Leaders Against Pain, to learn how to effectively advocate for 110 million people with chronic pain illnesses in the United States.

In spite of testimony by doctors, researchers, advocates, and patients, on March 13, 2014, the Value-based Benefits Subcommittee decided NOT to add fibromyalgia to the list of conditions covered by the Oregon Health Plan (Medicaid).

Oregon, as the only state in the U.S. that excludes Medicaid coverage of fibromyalgia, will have doctors, researchers, patients and advocates asking the Oregon Health Authority (OHA) to cover fibromyalgia diagnosis and treatments, in light of ongoing research and new ICD coding.